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Prader-Willi Syndrome Association

Resource Type

Organization - Private, Non-Profit

Description

Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers: <LI>a toll-free telephone number for information and referrals <LI>a bimonthly newsletter, The Gathered View <LI>publications and audiovisual presentations about PWS (See <LI>Publications Available From P.W.S.A.) <LI>an annual national conference for families and professionals (See Annual PWSA(USA) National Conference) <LI>a nationwide network of local chapters, parents, and professionals <LI>research funding to expand knowledge and treatment options <LI>Representation on the international level <P>

Ages

All Ages

Web Address

http://www.pwsausa.org/index.html

Languages

English

Contact Information

5700 Midnight Pass Rd.

Sarasota, FL 34242
Phone: 800-926-4797 941-312-0400
Fax: 941-312-0142
http://www.pwsausa.org/contactus/contact.htm
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