Prader-Willi Syndrome Is What I have , not Who I am!

Resource Type

Book - Parent/Child

Description

Our heartwarming new 70 page book is the first ever collection of writings by people with the syndrome-for others with the syndrome-and for all who want to understand what it is like to live with the syndrome. It is a window into the feelings of all of our young people with PWS-and a light reflecting all of their beauty and courage. This book will be appreciated by all older children and adults with the syndrome, and is a ?must? for all caregivers, providers and teachers of our older children.

Ages

All Ages

Age Groups

Adolescence (13-21), Adulthood (22+)

Languages

English

Author

Janalee Heinemann

Publication

2004 PWSA

Availability

• Prader-Willi Syndrome Association (USA) - Organized in 1975 to provide a resource for education and information about Prader-Willi syndrome and support for families, professionals and other interested citizens, PWSA (USA) was first headquartered in the Minneapolis/St. Paul area, then in St. Louis, Missouri, and currently in Sarasota, Florida since October of 1997. The association is governed by a 12 member Board of Directors who, together with an executive director and four officers, are responsible for directing the organization's operations and serving the 27 state and regional chapters and their members.
  http://www.pwsausa.org/index.html