Prader-Willi Syndrome: Coping with the Disease ? Living with Those Involved

Resource Type

Book - Parent

Description

"...This publication addresses not only the family members of the affected children, but also those who have contact with them - from the neighbor to the pediatrician." -From The Publisher

Ages

All Ages

Age Groups

Infancy (<1), Toddlerhood (1-3), Preschool/Kindergarten (3-5), School Age (6-12), Adolescence (13-21)

Languages

English

ISBN

3805578458

Author

Urs Eiholzer

Publication

2005 Karger, S. Inc.

Availability

• Barnes and Noble Bookstore - Large Chain bookstore with online catalogues and locations in most major cities
  http://www.barnesandnoble.com
• Prader-Willi Syndrome Association (USA) - Organized in 1975 to provide a resource for education and information about Prader-Willi syndrome and support for families, professionals and other interested citizens, PWSA (USA) was first headquartered in the Minneapolis/St. Paul area, then in St. Louis, Missouri, and currently in Sarasota, Florida since October of 1997. The association is governed by a 12 member Board of Directors who, together with an executive director and four officers, are responsible for directing the organization's operations and serving the 27 state and regional chapters and their members.
  http://www.pwsausa.org/index.html