CHADIS Resources for Families

A Source of Information about Activities, Programs, Providers, Products and Information for Children and Parents

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National Organization for Rare Diseases (Online - Parent)

"The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and...

All Ages

Age groups: Infancy (<1), Toddlerhood (1-3), Preschool/Kindergarten (3-5), School Age (6-12), Adolescence (13-21), Adulthood (22+)

http://www.rarediseases.org